The Kidney Collective
The Kidney Collective
Podcast Description
A podcast that gives voice to the many facets of living with kidney disease. Learn more at kidneyfund.org/podcast.
Podcast Insights
Content Themes
The podcast primarily focuses on personal narratives related to kidney disease, offering deep insights into living with the condition and various experiences like transitioning to dialysis and sharing perspectives as a living donor. For example, the inaugural episode features Alex Simmons, who discusses his unexpected kidney failure, the challenges of treatment, and the ongoing need for kidney health awareness.
A podcast that gives voice to the many facets of living with kidney disease. Learn more at kidneyfund.org/podcast.
The Kidney Collective™ co-hosts Tamara Ruggiero and Mike Spigler are joined by Vincent Ko, founder of KidneyFuture (formerly the CAKUT Foundation), to discuss congenital abnormalities of the kidneys and urinary tract (CAKUT). As a parent of a child living with CAKUT, Vincent shares how he felt learning about his daughter's diagnosis before she was even born and how he has used his personal experiences to create KidneyFuture.
The three discuss how CAKUT differs from other types of kidney diseases and the unique challenges people living with CAKUT face, including navigating the transition from being a pediatric kidney patient to an adult patient. Vincent also shares how he discovered the two greatest desires of pediatric nephrologists and of CAKUT patients/parents are aligned: (1) a better understanding of whose CAKUT progresses and whose doesn't and (2) more therapies that are safe and effective for children living with CAKUT. He also explains to Tamara and Mike how the kidney community may not be too far off from those goals.
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