Beyond the Count
Beyond the Count
Podcast Description
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
Podcast Insights
Content Themes
The podcast covers a variety of themes related to living with ITP, including personal growth, mental health, dietary management, and patient advocacy. Episodes may feature personal stories from individuals like Stassi Austin, discussing the challenges of growing up with ITP, or experts like Dr. Phil Choi who explore dietary aspects that could support platelet health. Specific focus areas include emotional resilience, practical tips for daily living, and addressing common misconceptions about ITP.
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
For many parents, hearing that their child has ITP is overwhelming. But what can feel even more confronting is being told that the best approach might be to “watch and wait.”
In this episode of Beyond the Count, Danielle Boyle is joined by paediatric haematologist Dr Melanie Jackson to explain why observation-based care is often the safest and most appropriate first step for children with ITP.
Together, they discuss:
- What “watch and wait” actually means in real life
- Why many children recover without treatment
- How clinicians assess bleeding risk rather than relying on platelet counts alone
- The signs and symptoms parents should be monitoring at home
- When treatment becomes necessary and what that looks like
- How to support your child to live as normally and safely as possible
This episode provides clear, practical guidance for parents navigating early diagnosis. It helps reframe “doing nothing” as active, evidence-based care, while giving families the tools and confidence to monitor, support, and advocate for their child.
Thanks for listening to Beyond the Count
For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.
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Instagram: @ITP_ANZ
Facebook:facebook.com/ITPANZ
LinkedIn:ITP Australia & New Zealand
YouTube:@ITPANZ
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Disclaimer
This podcast’s information is provided for general reference and was obtained from publicly accessible sources. The Podcast Collaborative neither produces nor verifies the content, accuracy, or suitability of this podcast. Views and opinions belong solely to the podcast creators and guests.
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