Beyond the Count
Beyond the Count
Podcast Description
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
Podcast Insights
Content Themes
The podcast covers a variety of themes related to living with ITP, including personal growth, mental health, dietary management, and patient advocacy. Episodes may feature personal stories from individuals like Stassi Austin, discussing the challenges of growing up with ITP, or experts like Dr. Phil Choi who explore dietary aspects that could support platelet health. Specific focus areas include emotional resilience, practical tips for daily living, and addressing common misconceptions about ITP.

Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
Understanding risk is important. But knowing how to ask questions, communicate what matters to you, and make confident decisions is where it all comes together.
In the final episode of our Decoding Risk series, Danielle Boyle is joined by haematologist Dr Danny Hsu to explore what it really means to become a partner in your own care.
Together, they discuss:
- the different ways patients engage with information
- why there is no ”right” way to be a patient
- how to communicate your preferences and goals to your healthcare team
- the importance of bringing a support person to appointments
- when and why a second opinion can be valuable
- and the three questions every patient should ask when discussing treatment options.
Dr Hsu also shares his memorable analogy about finding the right ”dance partner” when choosing a clinician, highlighting the importance of trust, communication, and shared decision-making in long-term ITP care.
This practical and empowering episode will help you feel more confident navigating appointments, asking questions, and becoming an active participant in decisions about your health.
Thanks for listening to Beyond the Count
For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.
📱 Follow us on social media:
Instagram: @ITP_ANZ
Facebook:facebook.com/ITPANZ
LinkedIn:ITP Australia & New Zealand
YouTube:@ITPANZ
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Do you have feedback or a story to share? We’d love to hear from you. Get in touch at [email protected]

Disclaimer
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