Beyond the Count
Beyond the Count
Podcast Description
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
Podcast Insights
Content Themes
The podcast covers a variety of themes related to living with ITP, including personal growth, mental health, dietary management, and patient advocacy. Episodes may feature personal stories from individuals like Stassi Austin, discussing the challenges of growing up with ITP, or experts like Dr. Phil Choi who explore dietary aspects that could support platelet health. Specific focus areas include emotional resilience, practical tips for daily living, and addressing common misconceptions about ITP.
Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.
In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance.
Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere.
We also examine some of the Alliance’s major milestones to date, including ITP Awareness Week, and how resource sharing and collaboration have helped drive change in over 30 countries worldwide.
Thanks for listening to Beyond the Count
For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.
📱 Follow us on social media:
Instagram: @ITP_ANZ
Facebook:facebook.com/ITPANZ
LinkedIn:ITP Australia & New Zealand
YouTube:@ITPANZ
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Disclaimer
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