Community Meets Clinic

Community Meets Clinic
Podcast Description
This podcast series from the Siegel Rare Neuroimmune Association (SRNA) is an opportunity for community members to get to know clinicians. They share their interests and passions, what led them to their work, and hopes for the future.
Podcast Insights
Content Themes
The podcast explores a variety of topics related to rare neuroimmune disorders, emphasizing the clinicians' journeys, their research focuses, and treatment approaches. Episodes cover subjects such as demyelinating disorders in specific communities, interdisciplinary care models, and advancements in therapies, with examples including Dr. Monica Diaz discussing outcomes in Latino communities, and Dr. Michael Levy describing the immune system's role in improving patient outcomes.

This podcast series from the Siegel Rare Neuroimmune Association (SRNA) is an opportunity for community members to get to know clinicians. They share their interests and passions, what led them to their work, and hopes for the future.
The “Community Meets Clinic” podcast series introduces clinicians and healthcare personnel specializing in rare neuroimmune disorders. In this episode, Krissy Dilger moderated a discussion with Dr. Shuvro Roy of the University of Washington and Dr. Catherine Otten of Seattle Children’s Hospital. Dr. Otten elaborated on her work with child neurology and pediatric neuroinflammatory disorders, while Dr. Roy discussed his research interests and the complexities of neuroimmunology [00:06:03]. They shared insights into their multidisciplinary clinic teams and how new patients can expect to be integrated into their care systems [00:11:01]. Both doctors highlighted the promising future of treatments for rare neuroimmunologic disorders and shared how they personally manage the emotional toll of their work [00:17:41]. You can view their medical profiles here:
https://www.uwmedicine.org/bios/shuvro-roy
https://www.seattlechildrens.org/directory/catherine-ellyn-otten/
Shuvro Roy, MD is an Assistant Professor of Neurology at the University of Washington, specializing in neuroimmunology, with a specific focus on multiple sclerosis (MS) and related neuroimmunologic disorders. He is Co-Director of the UW SRNA Center of Excellence for Rare Neuroimmune disorders. He is also a core teaching faculty member for the UW Medicine Multiple Sclerosis Center’s fellowship program, contributing to clinical education and research initiatives like the ECHO MS program in collaboration with the National MS Society. Dr. Roy is actively engaged in projects aimed at improving access to care, addressing healthcare disparities, and enhancing patient safety for individuals living with MS and related conditions. He has co-authored recent research articles in medical journals on a variety of topics, including studies on stiff person syndrome, encephalomyelitis, MOG-antibody disorder, and multiple sclerosis treatment protocols. Dr. Roy is dedicated to helping his patients thrive amid challenging, lifelong neurological conditions.
Catherine E. Otten, MD is a Clinical Associate Professor of Neurology at the University of Washington in the Neurology Department, specializing in child neurology and pediatric neuroinflammatory disorders. Dr. Otten is the Neuroimmunology Medical Director at Seattle Children’s Hospital where she runs subspecialty programs for patients with rare neuroimmune conditions. She is board-certified in Pediatrics and Neurology. She leads the Pediatric Neuroimmunology clinic serving patients with multiple sclerosis, MOGAD, NMOSD, transverse myelitis, optic neuritis, acute flaccid myelitis, and other neuroimmune conditions.
Dr. Otten co-leads the Inflammatory Brain Disorders Clinic, a multidisciplinary hub serving patients with autoimmune encephalitis, autoinflammatory disease, and other forms of brain inflammation. Her work extends across Alaska, where she has provided care in outreach clinics in rural Alaskan communities for the past decade. Her academic work includes collaboration with CDC as a consultant on acute flaccid myelitis, as well as published work on autoimmune encephalitis, demyelinating disease, and other neuroimmune conditions. She is committed to the care of pediatric patients with neuroinflammatory diseases and their families across the Pacific Northwest.
00:00 Introduction
02:01 Journey into Neurology and Neuroimmunology
06:03 Research and Clinical Interests
11:01 Multidisciplinary Clinic Teams
17:41 Self-Care and Wellness
25:04 Future of Rare Neuro Immune Disorders
27:57 Conclusion and Final Thoughts

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