Rare disease education
Rare disease education
Podcast Description
Rare Disease Education is an educational initiative focused on raising awareness about the current challenges in rare diseases.
Read more on, https://rarediseaseeducation.com/
Podcast Insights
Content Themes
Focuses on the complexities of rare diseases with specific episodes exploring the relationship between Paroxysmal Nocturnal Hemoglobinuria (PNH) and chronic kidney disease, alongside challenges in cross-specialty care and multidisciplinary approaches.
Rare Disease Education is an educational initiative focused on raising awareness about the current challenges in rare diseases.
Read more on, https://rarediseaseeducation.com/
A podcast with Prof Elena Solomou, Haematologist and PNH expert and Prof Alberto Ortiz, Nephrologist provides an overview of PNH as a complex rare disease, explores the need for better understanding of extra-haematological complications, focusing on the impact on kidney disease and addresses ways to support cross-specialty care between haematologists and nephrologists.
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