How hard should it be to get the care you need?  In this episode of the Crip Trip Podcast, Danny and Fred are joined by Karli to talk about her fight with local health authorities to secure more care hours.  From navigating complex systems to pushing back against decisions that impact daily life, Karli shares what it takes to advocate for yourself when the system falls short.  This is a raw conversation about persistence, access and the reality of fighting for the support you need.

Watch the Video Podcast episode now on YouTube

Chapters

• Show Intro (00:00)
• Introducing Karli Drew (00:20)
• Fighting for More Care Hours (01:43)
• Health Care Assessment Protocols, Bureaucracy & Dehumanization (05:23)
• The Tale of Danny’s Power Chair Cushion (07:46)
• Unmet Needs & Overreliance on Familial Supports (08:49)
• Clueless Maliciousness of the System (11:10)
• Advocacy, Awareness & Action (12:22)
• Care Issues Across Canada (14:25)
• Burden of a Bloated Bureaucracy (16:13)
• Push Towards Institutionalization (17:37)
• Extraordinary Care (19:09)
• Long Wait for Co-Op Housing (19:44)
• Audacity & Surveillance (20:27)
• “What’s so Bad About Institutionalization?” (22:48)
• Dealing with Neglect (24:02)
• Bad Policy, Abuse & Exploitation (25:14)
• Pressure Sore Prevention (26:15)
• Advocacy Strategies & Finding Hope (26:48)
• Disability Renaissance & Community Advocacy (27:45)
• Options for a “Tax Burden” (28:40)
• Closing Remarks (29:32)

Karli Drew Bio

Hi! I’m Karli Drew — a Disabled and vibrant-haired writer, creator, consultant, and activist. I specialize in all things disability.

When I’m not working or fighting injustices… you can find me sipping on iced coffee, rambling about my special interests, and/or making lame jokes about my disabilities (see what I did there?).

Follow Karli Drew on Social Media: 

• Instagram @Karlei
• Facebook @KarLeia

See more of Karli Drew in AMI’s History in 60 “Charter & Change”

Check out Crip Trip highlights and the video podcast episodes on YouTube!

Watch the full series on AMI-tv and AMI+ and follow Crip Trip on Instagram

More about the Crip Trip Disability Podcast

Season one of Crip Trip followed quadruple-amputee artist Daniel and his longtime friend, Frederick. Together, they crossed the continent in a rundown RV from Edmonton to New York City. The journey exposed barriers to accessibility and disability justice. It also tested their friendship—and their fight for independence in a raw and comedic way.

The journey almost broke them… but they’re going to do it again.

Season 2 picks up exactly one year after the first chaotic road trip, where we see what Daniel & Frederick have accomplished since the making of their short film, Tales from the Crip’d.  After learning of a close friend’s decision to go through MAID, the ambitious duo is feeling more motivated than ever to make life worth living and decide to hit the road again to follow their dreams. The plan? Produce a disability-themed late night talk show using analog equipment from the 90s while driving down the West Coast.

Final destination? Vegas – and this time they’re going all in.

Host Bio’s:

Daniel Ennett

Daniel Ennett is a filmmaker, artist, and advocate from Amiskwacîwâskahikan

(ᐊᒥᐢᑿᒌᐚᐢᑲᐦᐃᑲᐣ, so-called Edmonton). Daniel hosted 3 seasons of the web-series Invincible, and the short film Beneath the Surface. Both of those projects follow his adventures as an above elbow/knee quadruple amputee where he tried various adaptive sports like skiing, skydiving, and scuba diving with sharks.

He did all of this in collaboration with his friend Frederick Kroetsch. Together they worked on a 35mm art film, Form and Func7on, as well as a short film Lim(b)itless, where he participated in body suspension. Working with Catapult Pictures, he’s created a series of pitches while he finished his honours degree in psychology. As a sophomore filmmaker he recently made Flesh Ballet, a visual commentary on ableism. From 2022-2023 Daniel worked as a co-director on CBC’s TV-series Push. He maintains a thriving painting/photography practice. His work currently focuses on bringing light to Disabled experiences.

• Facebook: https://www.facebook.com/daniel.a.ennett
• Instagram: https://www.instagram.com/p.paradox/

Frederick Kroetsch

Frederick first met Daniel Ennett in 2013 when trying to find a web-series to produce. When their show Invincible was greenlit, Frederick left the world of broadcast journalism to move fulltime into documentary TV production. The two of them have been making projects that challenge society’s views on disability ever since.

• Facebook: https://www.facebook.com/frederick.kroetsch
• Instagram: https://www.instagram.com/frederick_kroetsch
• TikTok: https://www.tiktok.com/@frederickkroetsch

About AMI

AMI is a media company that entertains, informs and empowers Canadians with disabilities through three broadcast services — AMI-tv and AMI-audio in English and AMI-télé in French — and streaming platform AMI+. Our vision is to establish AMI as a leader in the offering of accessible content, providing a voice for Canadians with disabilities through authentic storytelling, representation and positive portrayal. To learn more visit AMI.ca and AMItele.ca.

Find more great AMI Original Content on AMI+

Learn more at AMI.ca

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• Email [email protected]

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