Retina International
Retina International
Podcast Description
Each month, we feature powerful personal stories from our members, offering a unique window into their experiences, challenges, and triumphs. In addition to these firsthand accounts, we’ll engage with leading researchers, clinicians, policymakers, and industry innovators to explore the latest advancements in retina research, cutting-edge care solutions, and the evolving landscape of support for those living with retinal conditions. Tune in for thought-provoking conversations that illuminate the path forward in the fight against retinal degenerative diseases.
https://retina-international.org/
Podcast Insights
Content Themes
The podcast highlights themes such as personal experiences with retinal conditions, mental health challenges, the latest advancements in retina research, and global support strategies for those affected. Examples include discussions on mental health in the context of rare eye diseases and insights from the Retina International World Congress.
Each month, we feature powerful personal stories from our members, offering a unique window into their experiences, challenges, and triumphs. In addition to these firsthand accounts, we’ll engage with leading researchers, clinicians, policymakers, and industry innovators to explore the latest advancements in retina research, cutting-edge care solutions, and the evolving landscape of support for those living with retinal conditions. Tune in for thought-provoking conversations that illuminate the path forward in the fight against retinal degenerative diseases.
https://retina-international.org/
In this special joint episode of Canal Retina and Perspectives Podcast, recorded in Dublin, we talk about the global fight against inherited retinal degenerations (IRDs) and age-related retinal diseases – and invite you to United in Vision – the Retina International World Congress 2026 in Fort Worth, Texas.Host David Sanchez is joined by:Avril Daly – CEO, Retina InternationalJason Menzo – President & CEO, Foundation Fighting Blindness (FFB)Together, they discuss:What Retina International is: a global umbrella of patient-led organizations working to advance research, diagnosis, access to care, and patient empowerment for people living with retinal diseases worldwide.Key concerns for patients and families:Maintaining independence and accessing proper support servicesThe shock of being told you may lose visionThe importance of genetic diagnosis for IRDs (over 350 genes involved)Understanding research, clinical trials, and what they really mean for everyday lifeWhy global collaboration is essential:Researchers, clinicians, patients, policymakers, and industry working togetherBuilding capacity and support in regions where people with IRDs often stay at home without services or informationEnsuring equitable access to new therapies and care pathwaysThey then introduce the upcoming Retina International World Congress + FFB Visions Conference – “United in Vision”:When: June 12–13, 2026Where: Fort Worth, Texas, USAhttps://www.fightingblindness.org/visions-2026
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