Coffee & Community: Cutaneous Lymphoma Conversations
Coffee & Community: Cutaneous Lymphoma Conversations
Podcast Description
A podcast to bring together the many voices of the cutaneous lymphoma community to share both their experiences and knowledge about cutaneous lymphomas.
In each episode, we will dive into the unique stories and perspectives of our guests; exploring cutaneous lymphoma through their lens. No matter who you are, a person living with CL, a healthcare or industry professional, or simply someone interested in learning more - this podcast is for you.
Podcast Insights
Content Themes
Explores personal experiences and medical insights relating to cutaneous lymphomas, featuring topics such as patient advocacy, navigating the healthcare system, community support, diet, and mental health. Episodes, like Sheila J's journey, emphasize the impact of information and empowerment on living with chronic illness.
A podcast to bring together the many voices of the cutaneous lymphoma community to share both their experiences and knowledge about cutaneous lymphomas.
In each episode, we will dive into the unique stories and perspectives of our guests; exploring cutaneous lymphoma through their lens. No matter who you are, a person living with CL, a healthcare or industry professional, or simply someone interested in learning more – this podcast is for you.
summary
In this episode, Harjeet K. shares her profound journey with cutaneous lymphoma, detailing her diagnosis, treatment, and the emotional challenges she faced. From navigating the healthcare system as an immigrant to advocating for awareness in the South Asian community, Harjeet’s story is one of resilience and hope. She emphasizes the importance of communication, support networks, and breaking stigmas surrounding cancer, particularly in her cultural context. Harjeet also discusses the impact of her treatment on her fertility and mental health, highlighting the need for awareness and education in these areas.
takeaways
- Harjeet was diagnosed with stage four cutaneous lymphoma at age 32.
- The diagnosis process was lengthy and filled with uncertainty.
- Isolation during treatment was a significant emotional challenge.
- Harjeet’s brother was a perfect match for her stem cell transplant.
- Communication about cancer is often lacking in the South Asian community.
- Harjeet created a Facebook support group called Chai and Hope for South Asian cancer patients. www.facebook.com/chaiandhope
- Advocacy for health awareness is crucial for patients and their families.
- Fertility issues and menopause are often overlooked in cancer treatment discussions.
- Harjeet emphasizes the importance of asking for help and support.
- Sharing her story has helped others feel less isolated in their cancer journeys.
Chapters
00:00 Introduction to Harjeet’s Journey
01:12 The Diagnosis and Initial Struggles
03:27 Navigating Treatment and Family Dynamics
06:35 Stem Cell Transplant Decision
09:27 The Isolation of Treatment
13:56 Recovery and Reflection
16:35 Milestones and Gratitude
28:56 Navigating Silence and Isolation in Cancer Treatment
31:38 The Power of Sharing: Blogging and Community Support
35:19 Breaking Stigmas: Cancer Myths in the South Asian Community
37:38 Advocacy and Self-Advocacy in Healthcare
39:59 Understanding Early Menopause and Its Impact
40:15 Creating Community: Chai and Hope Initiative www.facebook.com/chaiandhope
Disclaimer
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