The SEND Mum Club
Podcast Description
The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.
Podcast Insights
Content Themes
The podcast deeply explores themes such as the emotional realities of parenting children with disabilities, navigating diagnoses like Down syndrome, and sharing coping strategies through personal narratives. Specific episode examples include discussions on the challenges faced by mothers of twins with rare genetic conditions and the journey of receiving a diagnosis, showcasing the highs and lows of parenting while emphasizing community support and celebrating small victories.
Ciara Burnside joins me in this episode to talk about her 6 month old son Ralph who has Epidermolysis Bullosa, otherwise known as EB or Butterfly Skin. She explains what that is, what it means, and how her health anxiety added an extra layer of difficulty onto dealing with Ralph’s diagnosis. Ciara talks about the struggle to trust anyone enough to look after Ralph due to how fragile his skin is, and how the condition is so rare even medical professionals have struggled to handle in in the right way.
Ciara is on a mission to raise awareness of EB and is also campaigning for more research into the condition. You can sign the petitions she talks about in the episode here:
https://petition.parliament.uk/petitions/775393#main-content (UK only)
https://www.change.org/p/fund-a-future-for-people-living-with-epidermolysis-bullosa-eb (worldwide)
You can find Ciara on socials here:
Instagram – @ciaraburnsidex
TikTok – @ciaraburnside
The charity Ciara mentions is here:
Disclaimer
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