The SEND Mum Club
Podcast Description
The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.
Podcast Insights
Content Themes
The podcast deeply explores themes such as the emotional realities of parenting children with disabilities, navigating diagnoses like Down syndrome, and sharing coping strategies through personal narratives. Specific episode examples include discussions on the challenges faced by mothers of twins with rare genetic conditions and the journey of receiving a diagnosis, showcasing the highs and lows of parenting while emphasizing community support and celebrating small victories.
Amy Draper is my guest this week talking about her 18 month old son Donnie. Amy was told at 13 weeks pregnant there was a high chance her baby had Down syndrome but when he was born it was clear it was something else. After waiting a year for full genetics results Donnie was diagnosed with the very rare Aarskog-Scott syndrome. We talk about how it felt to be expecting one diagnosis only to receive a different one, the lack of support and information when dealing with such a rare syndrome, and why Amy feels in limbo without a clear medical plan to move forwards with.
The charity Amy mentions in this episode is here:
www.aarskogsyndromefoundation.co.uk
Trigger warning: we discuss baby loss in the episode so please listen with care
Disclaimer
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For a complete disclaimer, please see our Full Disclaimer on the archive page. The Podcast Collaborative bears no responsibility for the podcast’s themes, language, or overall content. Listener discretion is advised. Read our Terms of Use and Privacy Policy for more details.