The SEND Mum Club
Podcast Description
The SEND Mum Club is a parenting podcast with a difference. Made specifically for parents with children with all kinds of additional needs and/or disabilities. It's a place to share the joys and challenges of raising children with extra needs, with raw, honest conversations, designed to make you feel seen and heard on a journey none of us expected to be on.
Podcast Insights
Content Themes
The podcast deeply explores themes such as the emotional realities of parenting children with disabilities, navigating diagnoses like Down syndrome, and sharing coping strategies through personal narratives. Specific episode examples include discussions on the challenges faced by mothers of twins with rare genetic conditions and the journey of receiving a diagnosis, showcasing the highs and lows of parenting while emphasizing community support and celebrating small victories.
This episode marks a year of The SEND Mum Club podcast. Thank you so much for listening!
Liz Day is my guest this week, talking about her 4 year old son Henry who has the CASK gene mutation, an extremely rare genetic condition that affects boys much more severely than girls. We discuss the bleak outcome they were told to expect in terms of life expectancy and how Henry has already proved the doctors wrong. Liz talks about going back to work and how she manages that alongside Henry’s needs. We discuss how hard it is to give over some of Henry’s care to carers and the difficulty in finding peer support when his condition is so rare in boys.
Liz mentions the Unique charity as a good resource if you’d like to learn more about Henry’s condition https://rarechromo.org/disorder-guides/
You can find Liz on Instagram @medical_mumma_kickingcask
Disclaimer
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