These Kids Can't Wait
These Kids Can't Wait
Podcast Description
Welcome to These Kids Can't Wait. A podcast that brings you closer to researchers, doctors, and advocates working to drive progress and raise awareness for rare diseases.
Podcast Insights
Content Themes
The podcast covers themes such as the journey and challenges associated with rare diseases, the significance of early diagnosis and treatment, and the impact of patient advocacy, highlighted in episodes discussing personal experiences with Alpha-Mannosidosis and innovative treatments for Beta-Mannosidosis.
Welcome to These Kids Can’t Wait. A podcast that brings you closer to researchers, doctors, and advocates working to drive progress and raise awareness for rare diseases.
Episode: An Update from The Lost Enzyme Project
The founders of The Lost Enzyme Project share the journey to develop a treatment for Beta-Mannosidosis—how far we’ve come and how far we still have to go.
From early momentum to real progress, this episode offers a behind-the-scenes look at what it takes to move a rare disease treatment forward—the challenges, the milestones, and the urgency driving it all. Because for our kids, waiting isn’t an option.
🎧 Listen now
Learn more about The Lost Enzyme Project:
🔗 https://tlep.org (https://tlep.org/)
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