The Exceptional Caregivers Life
The Exceptional Caregivers Life
Podcast Description
Connect with a community that gets it. Real and compassionate conversations about the highs and lows of caring for individuals with disabilities and complex needs, hosted by Surrey Place’s Family Advisory Council members Liz Phipps & Wendy Robertson. Stories of successes and challenges—of finding joy, hope, humour, respite & community to keep going on a journey that is often hard, exhausting and isolating. Hear about lived experiences with caring for individuals of all ages with autism, down syndrome, fetal alcohol spectrum disorder, Emanuel Syndrome, medical fragility and other complexities.
Podcast Insights
Content Themes
The podcast explores themes around caring for individuals with disabilities and complex needs, including autism, down syndrome, and fetal alcohol spectrum disorder. Episodes like the one with Linda Koehler and Sara Marcelin-Elliott discuss the pros and cons of community, lived experiences, and holistic approaches to advocacy and self-care.
Connect with a community that gets it. Real and compassionate conversations about the highs and lows of caring for individuals with disabilities and complex needs, hosted by Surrey Place’s Family Advisory Council members Liz Phipps & Wendy Robertson. Stories of successes and challenges—of finding joy, hope, humour, respite & community to keep going on a journey that is often hard, exhausting and isolating. Hear about lived experiences with caring for individuals of all ages with autism, down syndrome, fetal alcohol spectrum disorder, Emanuel Syndrome, medical fragility and other complexities.
In this episode, Liz and her guests explore the “service cliff”—what happens when your child turns 18? What does this foundational shift look like, and how do families find support when they need it most?
Wendy, usually one of the co-hosts of The Exceptional Caregiver’s Life, takes a turn in the guest chair to share more of her personal story. She is the mother of twin daughters and has spent the past 16 years navigating the journey of parenting and caregiving for a child with autism. Joining the conversation is Jeanny Scantlebury, Vice President of Adult Services at Surrey Place, as well as a clinician and systems leader. As children with special needs reach key age milestones, many of the supports and services their families have relied on begin to disappear. How do parents navigate the complexities of this transition? From maintaining continuity of care with doctors and specialists to ensuring their child continues developing the skills needed for adulthood and independence?
Special thanks to the Family Advisory Council for making “The Exceptional Caregivers Life” podcast possible. This podcast was made possible by the donations from the Arthur and Audrey Cutten Foundation and The Harry E. Foster Foundation.
All episodes are produced by Caleb Buys.
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Disclaimer
This podcast’s information is provided for general reference and was obtained from publicly accessible sources. The Podcast Collaborative neither produces nor verifies the content, accuracy, or suitability of this podcast. Views and opinions belong solely to the podcast creators and guests.
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