The CF Together Podcast
The CF Together Podcast
Podcast Description
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.
Throughout each episode you will hear from members of the CF community, researchers, and clinicians.
This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.
On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
Podcast Insights
Content Themes
The podcast covers a variety of themes related to cystic fibrosis, including fertility, parenting, ageing, menopause, chronic pain, and life after transplant, with episodes such as a candid discussion on male fertility and the IVF journey shared by fathers living with CF.
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.
Throughout each episode you will hear from members of the CF community, researchers, and clinicians.
This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.
On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
In this episode of the CF Together podcast, you will hear two heartfelt and powerful conversations from within the cystic fibrosis community.
First, Lyndall Grace, who lives with cystic fibrosis, speaks with Savannah May about her incredible journey to motherhood. Savannah shares her experiences with IVF, the challenges and triumphs of parenting with CF, and the unexpected joy of conceiving her second child naturally after starting Trikafta.
Then we hand the mic to Raphael Recht, who explores the often-overlooked topic of chronic pain in CF. He’s joined by joined by Anastasia Ward and Dr. Keith Ooi, who’ll walk us through their research findings on chronic pain in CF — a topic that’s gaining much-needed attention.
And finally, Kelly Exner, Clinical Services Manager at CF Together, will talk about practical pathways to accessing help for chronic pain management.
Follow here for more on Anastasia Wards Research into Chronic pain living with cystic fibrosis
Pain in adults with cystic fibrosis – Are we painfully unaware? – Journal of Cystic Fibrosis
Disclaimer
This podcast’s information is provided for general reference and was obtained from publicly accessible sources. The Podcast Collaborative neither produces nor verifies the content, accuracy, or suitability of this podcast. Views and opinions belong solely to the podcast creators and guests.
For a complete disclaimer, please see our Full Disclaimer on the archive page. The Podcast Collaborative bears no responsibility for the podcast’s themes, language, or overall content. Listener discretion is advised. Read our Terms of Use and Privacy Policy for more details.