Dystrophy Diaries

Dystrophy Diaries
Podcast Description
This podcast is about living life with Muscular Dystrophy. It looks at what it’s like to be diagnosed at a young age, navigating relationships, employment, university alongside a disability. There will be weekly guests who will share their knowledge and experience. There will be episodes focused on Parental Nutrition, being an ambulant wheelchair user, growing up with muscular dystrophy, navigating my relationship with my disability and many other topics. This is an exciting podcast for listeners of all abilities!
Podcast Insights
Content Themes
The podcast explores themes related to life with Muscular Dystrophy, including employment challenges, personal relationships, accessibility issues, and health management. Specific episodes discuss topics like parental nutrition, traveling with a disability, and individual journeys of self-acceptance and advocacy.

This podcast is about living life with Muscular Dystrophy. It looks at what it’s like to be diagnosed at a young age, navigating relationships, employment, university alongside a disability. There will be weekly guests who will share their knowledge and experience. There will be episodes focused on Parental Nutrition, being an ambulant wheelchair user, growing up with muscular dystrophy, navigating my relationship with my disability and many other topics. This is an exciting podcast for listeners of all abilities!

Episode 30 is here
Please forgive my laidback look, I was so eager to film this episode I did it straight out of my evening shower!
In this episode, I talk about a recent shopping trip I went on this week with my personal assistant and the little blips we navigated! I took this opportunity to talk about the power of having a PA and what this looks like in my daily life. It is not an easy part of the journey, accepting help from an outside person. However, I hope hearing my experience and advice may help ease some peoples anxieties around the topic
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Disclaimer
This podcast’s information is provided for general reference and was obtained from publicly accessible sources. The Podcast Collaborative neither produces nor verifies the content, accuracy, or suitability of this podcast. Views and opinions belong solely to the podcast creators and guests.
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