Albinism Life podcast
Podcast Description
Welcome to Albinism Life!
Brought to you by the Albinism Fellowship, this podcast dives into all things albinism-related. Hosted by Kristina Venning Rose, co-chair of the charity, we’re here to celebrate the highs, acknowledge the challenges, and share incredible stories from our community.
Join us as we explore personal journeys, hear from medics about the latest in research, vision, and genetics, and give a voice to everyone in our amazing community.
If you’d like to get involved or share your story, we’d love to hear from you! Drop us an email at [email protected].
Podcast Insights
Content Themes
The podcast covers various aspects of albinism including personal experiences, medical advancements, and social challenges. Episodes feature topics such as the basics of albinism, personal journeys like growing up with albinism, accepting oneself, and discussions on albinism research, with examples like interviews with pediatric ophthalmologists and discussions about navigating social situations in daily life.

Welcome to Albinism Life!
Brought to you by the Albinism Fellowship, this podcast dives into all things albinism-related. Hosted by Kristina Venning Rose, co-chair of the charity, we’re here to celebrate the highs, acknowledge the challenges, and share incredible stories from our community.
Join us as we explore personal journeys, hear from medics about the latest in research, vision, and genetics, and give a voice to everyone in our amazing community.
If you’d like to get involved or share your story, we’d love to hear from you! Drop us an email at [email protected].
Kristina Venning Rose sits down with Dr Jay Self, Paediatric ophthalmologist, and leading Albinism expert from Southampton UK. He explains the basics of albinism in an easy-to-understand way.

Disclaimer
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