BJ Stasio is a distinguished disability rights advocate and activist known for his direct involvement in driving systemic change for individuals with disabilities. As a “respectful agitator,” BJ has dedicated himself to fostering inclusivity and support systems that empower those with disabilities. He’s not just a self-advocate but someone who has curated conversations that lead to impactful enhancements in the community. BJ’s work revolves around the principle of transforming perceived disadvantages into strengths by emphasizing humanity and connectivity within support networks.

Carol Napierski is part of the New York Alliance for Inclusion & Innovation, an organization dedicated to promoting inclusion opportunities and innovative solutions. With her extensive background, Carol offers significant insights into creating supportive communities and developing natural, reciprocal relationships.

Episode Summary:

In this insightful episode of “A Housing Journey,” hosted by the New York Housing Resource Center, BJ Stasio engages in a thought-provoking discussion with Carol Napierski on establishing and nurturing natural supports for people with disabilities. The conversation delves into the heart of what natural support means, contrasting it with paid support systems, and exploring BJ’s personal experiences and definitions that illustrate the transformative power of these relationships.

BJ introduces the concept of natural supports as “trusted safety nets” that fill in when paid support is unavailable. He emphasizes the unique, unfiltered interactions he enjoys with his natural supports compared to structured engagements with professional aids. Throughout the conversation, BJ and Carol discuss methods to foster and sustain these vital connections, highlighting the importance of mutual respect, active listening, and personal investment in relationship cultivation. This approach underscores the core theme of the episode: redefining support systems in a way that removes labels and enhances human experience and interaction.

Key Takeaways:

• Natural Supports as Safety Nets: BJ redefines natural supports as trusted safety nets that provide unfiltered support in a way that professional aids cannot.
• Difference Between Paid and Natural Supports: The conversation highlights that while professional supporters have specific goals to accomplish, natural supports allow for a more genuine, reciprocal exchange.
• Humanizing Support Systems: By removing labels and engaging in reciprocal relationships, support systems become more human and effective.
• Building and Sustaining Relationships: Effective relationships are cultivated by being open, listening actively, and engaging reciprocally without preconceived notions or judgments.
• Self-empowerment and Grace: BJ advocates for giving oneself grace in building relationships and emphasizes the importance of engaging with a network that supports personal needs and ambitions.

Notable Quotes:

• “I no longer look at myself as a self-advocate. I look at myself as a respectful agitator.” – BJ Stasio
• “A natural support is basically somebody who just can be there to listen.” – BJ Stasio
• “Take the labels off of the thing and start living life as the human being you are.” – BJ Stasio
• “Give yourself some grace and develop a system of support or a system of friendship that works for you.” – BJ Stasio
• “It’s all about you. And remember always to listen and don’t suck the air out of the room with your problem.” – BJ Stasio

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