Rare and There
Rare and There
Podcast Description
Understanding rare diseases, such as Fabry disease, can help reduce the diagnostic delay and improve management of the disease. This series explores Fabry disease in discussions with clinical experts who share their practical experience and patient perspectives to help bring Fabry onto the radar of healthcare providers.This podcast is initiated, organised and funded by Amicus Therapeutics and intended for healthcare professionals in the UK and is not intended to replace the need for medical consultations. Copyright 2024 Amicus Therapeutics. All rights reserved. NP-NN-UK-00031124 DOP: November 2024 Hosted on Acast. See acast.com/privacy for more information.
Podcast Insights
Content Themes
The podcast emphasizes themes such as understanding rare diseases, improving diagnostic processes, enhancing patient management, and addressing health inequalities. Example episodes include discussions on health inequities with Dr. Sondra Butterworth, genetic testing processes with Dr. Viraj Patel, and the significance of inherited metabolic disease centers with Dr. Uma Ramaswami, all aimed at informing healthcare providers about current trends and practices in rare diseases.
Understanding rare diseases, such as Fabry disease, can help reduce the diagnostic delay and improve management of the disease. This series explores Fabry disease in discussions with clinical experts who share their practical experience and patient perspectives to help bring Fabry onto the radar of healthcare providers.
This podcast is initiated, organised and funded by Amicus Therapeutics and intended for healthcare professionals in the UK and is not intended to replace the need for medical consultations. Copyright 2024 Amicus Therapeutics. All rights reserved.
NP-NN-UK-00031124 DOP: November 2024
Hosted on Acast. See acast.com/privacy for more information.
The sixth instalment of ‘Rare and There’ invites Dr. Lisa Kauffman an expert in communication skills for clinicians. She shares her insights on how to improve communication skills in clinical practice for individuals with rare disease. Living with a rare disease can be challenging, so providing effective communication in the clinic could be the key to fostering collaborations which accelerate the understanding, diagnosis and therapeutic management of rare diseases.
This podcast was initiated, organised and funded by Amicus Therapeutics UK Operations Ltd and is intended for healthcare professionals in UK. The views expressed reflect the experience and opinions of the speaker. Individual experiences may vary.
NP-NN-UKI-00161024 (date of preparation: February 2025)
Hosted on Acast. See acast.com/privacy for more information.
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Disclaimer
This podcast’s information is provided for general reference and was obtained from publicly accessible sources. The Podcast Collaborative neither produces nor verifies the content, accuracy, or suitability of this podcast. Views and opinions belong solely to the podcast creators and guests.
For a complete disclaimer, please see our Full Disclaimer on the archive page. The Podcast Collaborative bears no responsibility for the podcast’s themes, language, or overall content. Listener discretion is advised. Read our Terms of Use and Privacy Policy for more details.